What is the specific chronic diseases of children suffering from? Stress A -- talk about the treatment for specific child chronic diseases. At present, the project is a chronic disease with the aid of a child suffering from medical expenses borne by the state and local governments by some as a system to study and treatment was founded in 1974. At first it was a business without legal basis, the revision of the child welfare law enacted by Congress in November 2005, since April, based on the law and the system is stable. AtLooks like the following. To add a device object disease at chronic digestive diseases and disease group by group, the Minister of health, labour and welfare subject to 514. There was only the hospitalization was a disease, and it has become a subject of all disease and hospital. Extended object age under 18 years old, new, and was continued for up to 20 years old. And other medical expenses to balance the public expenditure system, taking into account was introduced according to the own expense of household income.To meet a certain standard (severe), severe patient copayment is eliminated. The equipments of the welfare service. In the prior art, has been limited to the facilities, medical facilities, can now be used across multiple facilities. In addition, the content can be more than the conventional technical analysis in the aspect of research. "The main body" is the core city of prefectures and ordinance-designated city.All 514 disease as an object, and left to the discretion of each municipality will change the number of disease in its financial situation by the government. Well, 1) group by the object disease of malignant neoplasm, chronic kidney disease, chronic respiratory disease at chronic heart disease, endocrine disease were divided into 11 division at the primary disease, and diabetes. At the congenital metabolic disorders, autoimmune diseases, such as hemophilia at at nerve and muscle disorders at the chronic digestive disease. 2) the classification of disease and disease for the reference of nerve and muscle diseasesCongenital muscular dystrophy congenital nemaline myopathy, such as Fukuyama type congenital muscular dystrophy, muscular tubular congenital myopathy, muscle fiber type disproportion, central core disease such as mini core disease, congenital myopathy, tuberous sclerosis, mitochondrial encephalomyopathy, Lee, Kearns Sayre syndrome and encephalopathy (Leigh encephalopathy. The Rett syndrome, anhidrosis, subacute sclerosing panencephalitis (SSPE), infantile spasms (West Lennox-Gastaut syndrome syndrome,,It is found that severe myoclonic epilepsy in infancy. In addition, it contains many neurological disorders in diseases of metabolic disorders. Some of the nerve and muscle disease based on the gene abnormality, congenital disease is classified into the categories of metabolic disorders. In this, the hyperammonemia and metabolic disorder of organic acid and amino acid metabolism abnormality, leukodystrophy (MLD, ALD Canavan disease, disease, Alexander, Krabbe disease), muscle type glycogenosis, peroxisomal diseaseXeroderma pigmentosum, mucopolysaccharidosis (1, 2, mucolipidosis GM GM gangliosidosis, Niemann-Pick disease fucosidosis Lesch-Nyhan syndrome, and so on), the ニューロナルセロイドリポフスチン, Menkes disease, syndrome, syndrome, Pelizaeus bar. Merzbacher Wilson's disease, disease, Ehlers-Danlos syndrome and achondroplasia the include achondroplasia. In addition, Prader-Willi syndrome, endocrine disease, classificationXXX syndrome and Klinefelter's syndrome, syndrome, periodic ACTH generalized lipodystrophy, progeria, tracheal stenosis in the classification of the chronic respiratory disease, disease of malignant neoplasm is for various types of brain tumors. At your child or disease, please refer to the family doctor. One of these diseases are recognized, and if the disease is not recognized, and not a certain conditions, please refer to the family doctor. In addition, theIt is recommended to obtain information and access to the Ministry of health, labour and welfare. 3) in response to a specific part of the burden of chronic diseases in children with your home situation, taxation and charges for certain limit (monthly), hospital outpatient 11500 5750 yen. However, the person responsible for support to patients with severe case of municipal tax exemption or are exempt from charges in the case. Sports, 4) development and qualification of children with severe at 20, intelligence quotientOr more than 1 year old children in bed, which has a serious impairment in vision and hearing, it is significant of the hands, feet and body function disorder, which satisfies the criteria for certification of critically ill patients, there is no burden of paying the money. Well 5) business consulting services
* experiences for children with chronic diseases in children, such as using in business (including prefectural health center is mainly a peer support. Before the children of the intractable disease support networkIn order to support children and family illness or disability, and established the network telephone consultation, consultation and health and welfare, such as the extensive and society of pathology of patients were active. At the peer support project, the extension of the consultation, consultation, and went to peer supporters and various procedures, such as the coordinates of the volunteers are more familiar with continued support.However, there is not in use by the community, and in the future. Daily life utensil for patients with
* benefits (for the children at home is significantly interfere with specific child chronic diseases, including municipalities to engage in daily life is improved by the convenience of daily life daily life utensil from 2005 to benefit. The equipment to be of benefitSpecial bed mat toilet and special support equipment and auxiliary equipment and special urinal and bathing posture and head protective cap and a wheelchair and electric sputum aspirator cool UV cut cream is the best. The burden of self is also a duty to support the tax situation. Is the.
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