What is chronic diseases?A: talk about pediatric chronic specified disease treatment research operations increasingly. This business was founded in 1974 as the system also useful for treatment research (national and local governments 50% each), and assists children suffering from chronic diseases medical expenses borne. Now a stable system was initially not legal grounds for business established in Parliament 11/2004 amendment to the Child Welfare Act, 4/2005, based on the law. Bottom line looks like the following. Diseases specified by the Minister of health, diseases and 11 diseases group to add a chronic digestive disease group 514 became a target. Disease hospitalization only for conventional was there, became target immigration, hospital visits, and in all diseases. Extending the age, now new accreditation is less than 18 years of age the continuation application is under 20 years old. Pay parity with other medical expenses medical security system, based on your household income has been introduced. Severe patients who meet certain criteria (severe certified), eliminates copayments. Welfare services, such as daily life equipment was improved. Now apply the legacy were limited to one facility medical facilities across multiple facilities. Also, in terms of research analysis technically more conventional content. Implementing entity is prefectures and designated cities and core city. Or 514 disease everything to left to the discretion of each municipality, changes number of diseases due to financial circumstances admit in their municipalities.1 ) target group:Malignant neoplasm-Chronic kidney diseaseChronic respiratory diseasesChronic heart disease-Endocrine disordersAnd connective tissue diseases-Diabetes mellitusA case of congenital metabolic disorders-Hemophilia, blood and immune disorders-Neuro-muscular diseasesChronic digestive diseases The is divided into 11 diseases Division.2 ) diseases and subject criteria Diseases Division of neuro-muscular disease is congenital hereditary muscular dystrophy, Fukuyama type congenital muscular dystrophy, nemarinmiopatea, muscle of myopathy, congenital myopathy, congenital muscle type non-uniform of, hyperthermia, mini core disease, tuberous sclerosis, mitochondrial myopathy, Kearns-Sayre syndrome, Lea encephalopathy (Leigh encephalopathy), Rett syndrome, painless anhidrosis, sub acute Sclerosing Panencephalitis ( SSPE ), infantile epilepsy West syndrome and Lennox-Gastaut syndrome, Severe Myoclonic epilepsy in infancy has been certified. Otherwise the disease classification of inborn error of metabolism in the many neurological diseases. For the neuro-muscular disease is based on the gene abnormality, disease classification of inborn error of metabolism are classified. This during in hyperammonemia and organic acid metabolism disorders, amino acid disorders, white quality dystrophy MLD, ALD, Alexander disease, Canavan disease, krabbe disease, muscle-glycogen storage disease, peroxisomes disease, xeroderma pigmentosa, Mucopolysaccharidosis, mucolipidosis ( GM1, GM2 gangliosidosis, Niemann-Pick disease, vkosydowsis etc ), Lesch-Nyhan Syndrome, neuronarceloidripofuscin syndrome, Menkes disease, Lowe syndrome, Louis-bar syndrome, Pelizaeus-Merzbacher disease, Ehlers-Danlos syndrome, Wilson's disease, Achondroplasia the cartilage different nourishment syndrome etc are included. During the Division of endocrine disorders in Prader-Willi syndrome, XXX syndrome, Klinefelter's syndrome, periodic ACTH syndrome, generalized lipodystrophy, Progeria, chronic respiratory diseases classification in tracheal stenosis, malignant neoplasm disease classification is various types of brain tumors, such as target is. Try contacting your doctor, or your child's disease are diseases. Accepted images of these disease diagnosis and are not recognized and no constant conditions, so please check your doctor. Also recommended to get information and access to the home page of the Ministry of health for more information.3 ) some amount Depending on the tax status of the families of children chronic specific diseases with certain expense is determined and, is 11,500 yen hospitalization, outpatient 5750 Yen limit (per month). However, if the person under a duty of the municipal taxes or tax-exempt if certified in children with severe borne are exempt.4 ) severely affected children with certification standards If you meet the severe patient certification standards such as bedridden, people with significant disabilities to eyesight and hearing, who have significant disabilities of hands, legs, and trunk function in less than 20 or more than 1-year-old child developmental and intelligence quotient is responsible for copayments.5 ) welfare services* Pediatric chronic diseases children experience caregiver, etc. by consulting business (State projects) Is the health centers as the primary peer support projects. Continued extensive activities earlier than incurable children's support network, support for children with illnesses or disabilities and home purposes, network phone counseling opened and accepted medical and welfare consultation, also presented the Association of parents and fellow patients, etc. In peer support business consulting business expansion and actually offer trainings, yorozu closer support for consultations and procedures regarding attendance, volunteer coordination, continuously. But is not running by the community, said the challenges of the future.* everyday tools for patient benefit municipal project For Pediatric specific children at home daily activities significantly hinder a 2005 benefit daily life necessities is provided the convenience of everyday life. Equipment will be eligible for benefits a urinal, special mat and special bed and walking assistance tool, bath AIDS and special urine collector and positions conversion machine, wheelchair, head protection CAP and Tan electric is a suction unit cool vest ultraviolet lines cut cream. Co-pay is still separated by a person under a duty of taxation.
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